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Independent Autism Panel Forms to Counter Kennedy-Led Federal Committee

An independent group of autism researchers and advocates, the newly formed Independent Autism Coordinating Committee, is meeting in Washington, D.C., on Thursday, March 19, 2026, to challenge what they call the Trump administration and HHS Secretary Robert F. Kennedy Jr.’s ideological takeover of the federal Interagency Autism Coordinating Committee. The move comes weeks after Kennedy named 21 new members to the federal panel, many aligned with his Make America Healthy Again initiative and his long‑held, scientifically debunked claim that vaccines can cause autism. Critics such as Boston University professor emerita Helen Tager‑Flusberg and Autism Science Foundation president Alison Singer say the federal committee has been "hijacked" by vaccine‑skeptic voices and warn that relitigating the vaccine‑autism myth diverts scarce research dollars from understanding real causes of autism and improving supports, particularly for people with profound autism. The independent group includes five former members of the federal committee, two former National Institute of Mental Health directors, other prominent scientists, advocacy leaders and one autistic member; they plan to focus on evidence‑based research priorities like profound autism and communication supports, as HHS abruptly postponed a scheduled federal committee meeting after the shadow panel’s plans became public. Some advocates, including autistic author Eric Garcia, back the new committee’s effort to confront misinformation but criticize its limited autistic representation, highlighting broader tensions over who gets to speak for the autism community in national policy debates.

Autism Policy and Research Vaccines and Public Health Politics

📌 Key Facts

  • The Independent Autism Coordinating Committee is holding its first meeting in Washington, D.C., on Thursday, March 19, 2026.
  • HHS Secretary Robert F. Kennedy Jr. recently appointed 21 new members to the federal Interagency Autism Coordinating Committee, many tied to his Make America Healthy Again initiative and his debunked belief that vaccines can cause autism.
  • The independent committee includes five former members of the federal panel, two former NIMH directors, leading scientists, advocacy‑group representatives and one autistic member, and is positioning itself as a science‑based alternative focused on evidence‑driven autism research and services.
  • HHS postponed a planned meeting of the federal Interagency Autism Coordinating Committee after news of the independent group’s plans became public, though it gave no explanation.

📊 Relevant Data

In 2022, the overall prevalence of autism spectrum disorder among 8-year-old children in the US was 1 in 31 (3.2%), with higher rates among Black (3.66%), Asian/Pacific Islander (3.82%), and Hispanic (3.30%) children compared to White children.

'Autism Epidemic Runs Rampant,' New Data Shows 1 in 31 Children Disabled by Autism — U.S. Department of Health and Human Services

The increase in autism diagnoses from 1 in 36 children in 2020 to 1 in 31 in 2022 is attributed to greater awareness, improved screening, and broader diagnostic criteria, rather than an actual rise in incidence.

Autism Society of America Responds to New CDC Report on Updated Autism Prevalence Rates — Autism Society

Black and Hispanic children with autism are often diagnosed later and have less access to early intervention services compared to White children, with Black children showing higher co-occurrence of intellectual disability (52.8%) versus White children (32.7%).

Prevalence and Early Identification of Autism Spectrum Disorder Among Children Aged 4 and 8 Years — Autism and Developmental Disabilities Monitoring Network, 10 Sites, United States, 2022 — Centers for Disease Control and Prevention

Genetic factors play a significant role in autism, with studies showing that individuals with more severe autism tend to have larger, rarer genetic variants, while environmental factors like advanced parental age also contribute to risk.

2025 Autism Research Year in Review — Autism Science Foundation

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March 19, 2026